April 13, 2010

the wisdom of chris rock

On Friday, I caught Chris Rock on Bill Maher’s show. And he had a message for all the Tea Partiers out there: If you only knew.

The two comedians were discussing health care, when Rock recalled visiting the hospital with his dad back in the day, and then more recently with his mom. At 22, Rock said, he was broke and not in a position to financially help his sick father. Consequently, his dad went to a third-rate hospital for a ruptured ulcer and died days later.

Fast-forward almost two decades, and a much richer Rock stops by to see his mom only to wonder if he stumbled upon a hotel rather than a hospital. There was a “concierge in the lobby,” Rock quipped, before noting “if the average person knew the discrepancies in health care, there would be riots in the street.”

He ain’t lying. When you get a taste of what good health insurance can get you, you realize how much of an advantage the have-mores actually have.

For the last two years, I’ve been being treated at one of the best cancer centers in the country, and I’m still shocked at the level of care. Like Chris Rock said, it’s like getting an upgrade to first class.

Last week, for example, I had an appointment with my chemotherapist. We talked about the results from my latest blood test, which had spiked in recent weeks but then subsided. I told her it was likely caused by stress, and she suggested that I talk to a shrink.

“This can be a lot to deal with,” she said. Maybe she was right, I thought. So I agreed to talk to a therapist on the spot.

An hour later, I’m getting my juice in the chemo suite when the phone rings. And guess who’s on the other end? That’s right, the therapist’s office.

In the 60 or so minutes that it took for me to see my doctor and then wait for my meds to get mixed in the pharmacy, my doctor told her assistant to contact the therapist’s assistant, who contact me. And there I was on the phone, with calendar in hand, coordinating schedules.

The kind voice on the other end told me that my doctor was worried about me and that she wanted me to talk to someone who could help. Talk about thorough. I felt like I was in that scene in The Wizard of Oz when Dorothy and crew are getting pampered before going to see the Wizard. Remember all the dedicated attendants? Several were curling the Lion’s hair, while others were combing Toto’s fur. And still others were buffing the Tin Man’s armor? It was like an assembly line of excellent service.

That’s what the right coverage can offer: a close network of people providing first-rate care. It sure is a beautiful thing.

Unfortunately, though, so many middle- and working-class Americans will never know what that’s like. If they could just get a taste, it would change they way they view health care forever.

And this access, or lack of, is what’s so perplexing about the Tea Partiers. Many of them are among the 38 million uninsured and underinsured in this country, but they are the most anti-health-care-reform people around.

And all they have to do is look inward to see the health care contradiction at its most absurd. The lawmakers that the Tea Partiers support have the kind of insurance that gives them access to top-tier treatment centers like mine. The voters who got them elected, however, don’t fare so well.

For the life of me, I can’t comprehend their reasoning or their anger. They were rioting in the streets all right. Only they didn’t know they were mad about the wrong damn thing.

 

March 31, 2010

the bellicose language of cancer

The New York Times ran a really great column recently written by a prostate cancer survivor. I probably shouldn’t call him that, because his entire piece is about how words are irrelevant when it comes to cancer, including how cancer patients identify themselves.

Fighter, warrior, survivor ― all inadequate, says author Dana Jennings. Cancer just is, and that’s pretty much all there is to it.

Point taken.

Actually, the piece makes a lot of sense. Some people just end up with life-threatening illnesses, serious ailments, bunions, etc., and others don’t. According to Jennings, life happens, you roll with the punches, and you don’t get to bestow special titles on yourself just because you’re diagnosed with cancer.

It’s a fresh perspective, I’ll say that much. After a lifetime of thinking of cancer patients as the ultimate troupers, Jennings’ take is a bit disarming. And although his column is definitely worth reading, I found myself disagreeing almost from the start.

Jennings isn't really feeling any of the above

Words, while often unable to completely define who we are, are indeed powerful, especially when it comes to self-identity. Referring to yourself as black, a woman, an American not only affects how you see the world but also how you see yourself.

And as a journalist, words are doubly important to me. When strung together, they can become a best seller, spark a protest, or make someone laugh. Even on their own, they can command attention. Consider, for example, the always offensive nigger, fag, or bitch. Or on the other end of the spectrum, the beauty of words like luscious, passionate, or luxurious.

Even the most banal words can become something more when we assign new or expanded meaning to them, and this is what happens with cancer. For many of us with the disease, the term survivor is more than just a catchphrase; it’s a call to action, a way to establish some sense of power in a situation where losing control mentally can happen very quickly.  For Jennings, however, it’s simply another one of cancer’s clichés:

“I sometimes think of cancer as a long and difficult journey, a quest out of Tolkien, or a dark waltz — but never a battle,” he writes. “How can it be a battle when we patients are the actual battleground?”

Maybe I’m missing the point here, but I would absolutely describe my experience with cancer as a battle. And, yes, my body is the front line, ground zero if you will, but my brain is constantly churning out orders for it to follow. There isn’t a day that goes by that I don’t warn myself not to get pulled in too deeply by cancer’s undertow. I remind myself pretty regularly that I can triumph over this disease, that I can fight the beast and live to tell about it.

What Jennings fails to acknowledge is that there is a reason why talking about life-altering illnesses evokes images of confrontation and struggle. Cancer strips us bare, and always the main goal, the only goal really, is to fight to stay alive. There aren’t many other analogies that can suffice.

The bottom line is that chronic diseases of all kinds breed toughness, and, as a result, a language has developed around them that is in no way trite or threadbare.

I call myself a survivor, a warrior, or better yet a slayer because when I do, those words make me feel strong — never inadequate.

March 22, 2010

i’m over it

really happy you passed health care and all. but, there's work to be done.

I was hoping to tap into my creative juices to pen something poignant about health care reform.

You know, history in the making and all that good stuff. But the more I tried, the less successful I became. And then I realized that after a year and half of reading and writing about health care reform, I’m over it.

As much as I wanted to be excited about watching the Democrats pull off  the “unthinkable” last night, it really was a pretty forgettable experience.

I kept flipping back and forth between CNN and the Discovery Channel, which was airing Life, another one of the network’s really amazing series about the planet’s animal inhabitants.

The latter won out every time.

I found the rolling pebble toad way more interesting than lawmakers offering their perspectives on the health care bill. While I was waiting for the commercials on Discovery to end, I’d go back to CNN only wonder why Congress hadn’t just passed the dog-on bill already.

The epilogues, the monologues, the wrap-ups, the summaries. It all sounded like incessant babbling after a while. And really all it amounted to was pouting on the Republican side and a lot of self-congratulating from Democrats.

The last Dem holdout, the anti-abortion proponent Rep. Bart Stupak, even went as far as giving his wife a shout-out for standing by him during such a difficult time and for handling all his calls.

Seriously?

I know reform has been a long time coming, and that getting this bill passed is pretty big deal. But the background noise of the health care debate became a bit too distracting. I heard a lot of talking, but nearly all the politicians who spoke yesterday sounded like Charlie Brown’s teacher to me.

Let’s get on with implementing some of the changes contained in the bill, shall we? Even if things start moving now, most Americans won’t reap the benefits included in the reform until 2014. I, for one, desperately need that pre-existing conditions clause to kick in like yesterday.

But this week will likely be marked by more health care drama. Already shouts of “baby killer” have been hurled across the House floor by the GOP. And Democrats will undoubtedly offer countless sound bytes about the “long, hard road to health care reform.”

The regurgitated language we’ll hear every day this week is TV at its most self-indulgent, and while lawmakers keep kicking sand in each other’s eyes, there’s a nation of millions (Tea Partiers included) who need to get this health care show on the road.