how do heroin addicts do it?

After more than a year of chemotherapy, my precious veins are shot.

one of the worst parts of chemo

Those inch-long needles have done some serious damage to my once-healthy blood vessels, and the oncology nurses have informed me that they probably won’t recover.

Great. Stupid cancer is leaving a trail of damage in its wake.

Before I started treatment in 2008, though, I had juicy veins, the kind that got nurses excited. And I was not needle shy. I didn’t wince at the sight of them or groan when I got stuck. Since the times when I actually saw a syringe were few and far between, I’d decided not to be dramatic about the occasional shot.

That was then.

After a good 70 or so injections, hypodermic needles have taken the top position on my buzz-kill list. They hurt like hell, and because I anticipate the pain, I make myself anxious about it. You’d think that over time, I’d build up some sort of resistance to the pain, but the more I get stuck, the worse it gets. My veins have become extremely sensitive, and sometimes they stop working. Who knew that even happened?

There have been several occasions, for example, when I’ve gotten stuck, and the nurses were unable to get a blood return. That’s right. Needles have been inserted into my veins, and no blood came out. Talk about bizarre. Other times, the needles could barely penetrate my skin because I have so much scar tissue in my arms. The constant onslaught of chemo injections has caused my veins to harden and restrict. They’ve become difficult to find and even more difficult to access. And the pain. I whine like a baby now every time I see a syringe. So much for all my boasting about being a trouper. Those days are long over.

With all the sticks cancer patients endure, I couldn’t help but wonder how intravenous drug users do this on the regular. How do they cope with needles daily, likely several times a day, and how do their blood vessels hold up? I’ve heard about users having collapsed veins, but many manage to keep up their habit for years, even decades. Natalie Cole was a heroin addict for 15 years.

I asked one of my nurses why we don’t hear about more IV drug users being hospitalized for destroyed veins. Her answer was interesting and disturbing all at the same time. “Because they’re not putting poison in their veins,” she said. And then she clarified. “Not the same kind of poison.”

Word? Since when did chemo become worse than smack? Apparently since forever. It’s far more toxic, the nurse said, and thus does more harm. Plus, heroin addicts use any and all veins possible, whereas the veins used for chemotherapy are limited to the forearm.

Since beginning my little research project on blood vessels, I’ve come to appreciate how fascinating they are. Veins are our lifeblood, literally. They range in size from 1 mm to 1.5 centimeters, yet they’re responsible for one of the body’s biggest jobs: pumping blood to all our muscles and organs. These elastic vessels can also take a lot of abuse, but they retreat when they’ve had enough.

Two months ago, after my nurses spent more than 30 minutes and three painful tries searching for mine, they suggested (more than suggested actually) that I get a port, a device placed under the skin in the chest that is connected to the jugular vein. All my chemo goes in this way now. So instead of getting several pricks a month, I get one supersize needle that looks like a pushpin, gets clicked into place, and involves numbing cream. Not the most pleasant experience. But I have to say that it feels good to give my veins a break. Maybe they’ll come back to me. One can only hope, right?

I certainly have a newfound respect for blood vessels, as well as most of my anatomy now that cancer has forced me to get acquainted with parts I never spent time thinking about before. Over the last year and half, I’ve come to realize just how delicate the body can be and, more importantly, how resilient.

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Filed under healthy and wise, if it ain't one beast, it's another, musings on cancer and chemo

how roland burris punked the democrats & saved the public option

This is a piece that I wrote for TheRoot.com. Considering the events of the last week, though, I thought it was important to re-post it here.

BurrisWhen Illinois Sen. Roland Burris took office almost a year ago, he already appeared to be a lame-duck politician.

After being appointed by the shady Gov. Rod Blagojevich in late December, Burris found himself shrouded in a haze of suspicion and controversy. With such a troubled introduction to national politics, it seemed as if “Blago’s boy” was little more than a political eunuch.

But the hard-knuckle Chicago politician seized his moment a few weeks ago when he proclaimed that he wouldn’t sign a health care bill that didn’t include a public option. With that, he not only propelled himself into prime time, landing  spots on C-SPAN, MSNBC, and Fox, but he also made himself relevant.

The landmark bill that passed the House on Saturday likely included a government-sponsored plan because of Burris. And if all goes right, he might just emerge as the savior of the public option. Read more here.

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Filed under health care, healthy and wise, the uninsured and underinsured

best week ever: a pennant and a public option

public_option_button-p145665537802481901t5sj_400It’s looking like a promising week. The Yankees are back and so is the public option. I hope.

A bill that includes a government-run plan is before the House, but whether it survives the next round of debates remains to be seen. Maybe it has a better chance of getting passed with the newly added opt-out option for states.

The fact that the public plan has been resurrected, though, is promising. After the insurance industry threatened to raise premiums a couple of weeks ago, and subsequent news polls showed that 57 percent of Americans back the idea of a government option, the Dems switched up their game plan.

Rather than worry about winning over the GOP, they’ve decided to push an agenda supported by their constituents. It’s about time, too. The Dems have gotten punked for far too long regarding health care reform. We’ll see if they follow up their words with action.

I’m really excited about the measure. I’ve been down for a public plan since the beginning. But there’s one voice that has been missing from the debate, one that I believe will further bolster support for universal coverage: people with insurance who rely on it regularly, people like me.

I have yet to hear the opinions of insured men and women living with health issues or chronic diseases such as cancer. Maybe it’s because they can’t rattle off sound bites. Or maybe because, if asked, they would make an incontrovertible case for why the government needs to step in for the 40 million uninsured in this country and the 38 million underinsured.

I often have discussions with the patients at the center where I’m being treated. And, as you may have guessed, health care reform is a popular topic. For the most part, the cancer patients I know are not only well informed, but they also support health care for everyone.

The reason for that is simple: When you’re facing  a serious illness, it tends to bring out a level of compassion you didn’t know you had, one that is desperately needed in a debate dominated by politics. Cancer survivors know what it’s like to be sick. And when your medical bills are in the six figures, you sure do appreciate health coverage. It’s nice not worrying about how you’ll pay for this week’s treatment or next week’s lab tests. The last time I checked, a CAT scan cost in excess of $7,000, and I’ve had two in the last three months.

Unlike the Tea Partiers, who—if they even have insurance to begin with—don’t want others to share in the health care spoils, cancer patients understand that universal coverage is a moral imperative. There’s something about walking through the fire that makes you want to help out the next person. You don’t want others to suffer or be denied care. U.S. Sen. Roland Burris of Illinois got it right. “It’s time to do it for the benefit of those who are uninsured,” he said about health care reform.

Last week, he came out publicly to declare that he has no intention of signing a bill that doesn’t include a government option. And although his primary motive is likely to land a spot on prime time, I’m not mad if he plays politics to promote the greater good.

With all the media coverage of the return of the public option, the junior senator stepped up at just the right time. Folks had counted him out, but he’s clearly determined to play hardball. Just like the Yankees. If we can get universal coverage and win the World Series, this will turn out to be a really good year.

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Filed under health care, musings on cancer and chemo, the uninsured and underinsured

chemo brain or garcia gene?

chemovs gar sampl1

illustration by artist calida (www.artistcalida.com)

My family is the real-life version of the Griswolds from National Lampoon’s. More space cadet than rocket scientist. The kind of people who are really good at getting in their own way.

You’ve seen us before. At the rest stop wondering how we drove 40 miles in the wrong direction. At the movies bragging about how we’re smarter than everyone else with our store-bought sodas and garbage bag full of homemade popcorn. Hours late to all the events we didn’t RSVP for.

So, several months ago, when I started suffering from chemo brain — short-term memory loss and a decline in cognitive abilities due to chemotherapy — I wasn’t sure whether the drugs were to blame or my Garcia genes. Let me provide a sketch of the patriarchs of our family for a little context.

My dad, Joe, has belt-attached holsters that sit on both hips. One is for his cell phone and the other is for his glasses. That in and of itself is pretty funny, because my dad wears his pants so high that his belt is typically above his belly button. But the real reason I bring this up is because he purchased the special holders to keep track of his phone and his specks, which he loses all the time. Invariably, though, one, if not both, of his hip-slung carrying cases winds up empty, and helping him retrace his steps goes something like this:

Joe: “Did you see where I put my glasses?”

Me: “Nope. Where did you have them last?”

Joe: “On my face.”

Those older ATMs, the ones where you insert your card in the machine, were a cruel joke for my dad. For some reason, he never caught on that the loud, methodical beeping at the end of the transaction was a reminder to grab your card. I can’t count how many times he’d go out to get money only to return with no card, cursing under his breath, because the machine sucked it up.

And it’s not just memory loss that gets the better of the Garcias. We have an uncanny knack for offending folks just by being ourselves, getting all the family gossip wrong, and landing in the most bizarre situations.

Take my uncle Tony, my dad’s younger brother. He’s gotten peed on by a Tiger, once choked a cab driver in Italy he thought was trying to cheat him, and is convinced that a rooster on the farm where he and my dad spent their summers as kids wanted to kill him.

This is the same uncle who wears a one-piece adult-size snowsuit indoors during winter because his historic home in Germantown, Pa., is too costly to heat. Get Joe and Tony together and forget about it.

When my cousin Calida and I moved to New York more than 10 years ago, our dads volunteered to drive the U-Haul. Why this was even allowed is beyond me.

this is exactly what my uncle's indoor snowsuit looks like

this is exactly what my uncle's indoor snowsuit looks like

We’d just gotten the last of my stuff from my mom’s house and were ready to hit the New Jersey Turnpike for the 100-mile trip. My uncle, who thought he was in drive but was actually in reverse, backed the moving truck into my mom’s wooden fence. The damage was pretty bad, but instead of calling an expert or telling my mom, the Garcias spent an hour working furiously to straighten out the bent pieces and then drove off. To this day, the latch on that fence still doesn’t work right.

Considering that I share the same DNA as Joe and Tony, I immediately looked inward when I lost two sets of house keys in the same week and noticed I was having difficulty remembering what I was saying mid-sentence.

At first, I attributed it to chemo. Cancer patients almost always have long-term affects from the meds, a mental fog if you will. But then I remembered that I am a Garcia. We are, by nature, challenged individuals.

This got me wondering who would win in a battle between chemo brain and the Garcia gene. And by win I mean which one is likely the biggest contributor to my cognitive lapses. Here are just a few examples of the sideaffects of cancer drugs:

* Being unusually disorganized
* Confusion
* Difficulty multitasking
* Short-term memory problems
* Trouble with verbal memory, such as remembering a conversation
* Trouble with visual memory

Heavy stuff, right? Maybe for anybody else’s family.  I’m beginning to think that a matchup between chemo brain and Garcia gene might be tied. As Joe and Tony have passed the Griswold syndrome down to their progeny, the above symptoms  just happen to be things that now plague the rest of us.

And all of this will be on full display during the family trip that we’re planning for next year. God help us.

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Filed under chemo brain, if it ain't one beast, musings on cancer and chemo

pink-and-proud players

tom brady in pink sneaks

tom brady in pink sneaks

NFL players in pink is a beautiful thing.

Every Sunday throughout October, your favorite athletes will be accessorizing in pink in honor of Breast Cancer Awareness Month. Pink gloves, pink sneakers. I even saw a pink ribbon on several pigskins. What an ingenious way to raise awareness.

The American Cancer Society and the National Football League joined forces to roll out the campaign. And it makes a lot of sense when you think about it. I’m sure almost all of the men in the league know someone who has been touched by the disease — a mother, a sister, an aunt, even other men. Of course they want to show their support.

It’s touching actually, to see all those big, burly guys rocking pink for such an important cause. Collaborative efforts pink balllike this is how you conquer cancer. It’s not always about promoting new drugs and treatments. Sometimes it’s about showing solidarity. Sometimes it’s about supporting from the sidelines (pun intended). Whoever came up with this idea needs to get a promotion. Go NFL.

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Filed under healthy and wise, musings on cancer and chemo

sister slayers

I didn’t know the first thing about fundraising. Before last week, I thought it meant knowing the right people with the right connections or folks with deep pockets who could whip out a checkbook at a moments notice. So when my sister, Toni, suggested that the two of us host an event to raise money for cancer awareness, I was apprehensive.

stacy, toni & tima

kenya, toni & tima

My friends, God bless them, aren’t in a position to donate a significant sum of money to my cause. And I was pretty sure that my sister wasn’t rolling with a crew of ballers either. Nevertheless, we moved forward with our plans for a day of reduced-priced nail, hair, and massage services at Alexander Myles Salon & Spa, my sister’s business in Wilmington, Del.

We were motivated less by our ability to pull off something fabulous and more by the fact that we’re both cancer survivors. Toni was diagnosed with Hodgkin’s disease, a cancer of the lymphatic tissue, more than 10 years ago, and she was inspired to take up the fight again after my diagnosis last year. Leave it to cancer to turn you into a crusader. This time around, though, she figured her best weapons were her blow-dryer and a flat iron. And as if we needed another reason to get inspired, September just happens to be Ovarian Cancer Awareness Month and Leukemia Lymphoma Awareness Month.

Toni and I started by coming up with a theme for our spa day, aptly named “Sisters Slaying Cancer,” and got the word out via e-mail and through friends and family. We reached out to Mizani, creator of professional hair care products, and L’Oreal to donate items for our gift bags, as well as a local businesses in Wilmington. We also invited representatives from the National Ovarian Cancer Coalition and the Leukemia & Lymphoma Society to talk about signs and symptoms.

Sissy, taking a break from giving chair massages

sissy, taking a break from giving chair massages

On Sunday, the morning of the event, we were still working feverishly to set everything up — arranging flowers and balloons, sweeping up hair from the day before, and making coffee. At 9:45 a.m., clients starting arriving. By 11 a.m., my sister’s shop was teeming with women. Nail techs were doing manicures and pedicures, stylists were threading eyebrows and washing hair, aestheticians were giving facials, there were raffles. It was a busy day — and a huge success.

happy to raise awareness

happy to raise awareness

Here’s what I’ve learned about holding a fundraiser: If it involves females and the promise of beauty, then you really can’t go wrong. Women love pampering, and if they can receive it while supporting a good cause, then so much the better.

But Toni and I certainly couldn’t have pulled off the event alone. The staff at Alexander Myles, who gave up their day off to work for free, performed wonders. So did Mizani and L’Oreal. Our gift bags were filled with premium hair care products and Color of Hope makeup bags, as well as other giveaways donated by folks looking to support us.

My dad donated a case of Champagne for mimosas, and mom brought all her friends, many of whom are cancers survivors themselves. And where would we be without all the women who came to get prettied up? There were about 50 in all, and a few who stopped by just to drop off a donation. Their checks of $20, $30, and $40 may not have been the deep-pocket money I imagined, but they meant far more. And at the end of the day, they added up to a pretty decent amount, 100 percent of which we donated.

sitting pretty

sitting pretty

As soon as the event ended, Toni and I started brainstorming about how to make it bigger and better next year — our second annual “Sisters Slaying Cancer” fundraiser.

daria & veronica

daria & veronica

stacy & darla

stacy & darla

looking fabulous

looking fabulous

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Filed under healthy and wise, ovarian cancer awareness, women rule

a chat with the insightful kerry washington

If ovarian cancer survivors could pick a fantasy cheerleading squad, we’d do well to draft Kerry Washington. The actress and Color of Hope spokeswoman has adopted our underfunded and underrepresented disease as her cause, and she really knows her stuff.

me & kerry

me & kerry celebrating health and hope

I caught up with her this week at the L’Oreal Paris “Health & Hope Breakfast,” and we talked symptoms, risk factors, and the importance of knowing your family history. Washington is as lovely in person as she is on screen, but she’s more than just a pretty face fronting a campaign. She’s informed, aware, and compassionate. Now, if we could just get her some teal poms-poms. Check out what she had to say in our Q&A.

CS: Kerry, you often talk about getting involved with Color of Hope, in part, because your mom is a breast cancer survivor. Knowing your family history is important for women who may be at risk for ovarian and breast cancers. Have you become more vigilant about your own health, doctor’s visits, and screenings since your mom’s diagnosis?

KW: Yes. My passion for raising awareness was born around my mother’s diagnosis. I’ve been given an opportunity to support women’s cancer issues in my personal and professional lives. It was really difficult at first when my mom got diagnosed, but our family talked about it, and it wasn’t just the “C word” anymore. She put it all on the table, and, as a result, we developed fluidity around talking about health in our family. I think as women, we tend not to talk to our physicians and ob/gyns. I’ve been to see mine so many times, but we really talked for the first time about health and cancer risks after my mom’s diagnosis. Women are not taught to talk about our bodies. We’re taught to say “down there.” We’re not taught to say vagina, uterus, ovaries — the proper biological terms for our anatomy. I think we have to break free from the stigmas we assign to our bodies.

CS: Looking good goes a long way toward feeling good, especially for women survivorKerrys who are likely to lose their hair, eyebrows, and eyelashes. You work in an industry where your physical appearance is always on display. What advice would you give to women who, because of their treatment, shed the things we associate with beauty and attractiveness?

KW: I think the thing that women dealing with this disease have to focus on is building themselves up when they start to feel down. You may be losing your hair, but you can still be beautiful. I’m terrified of sounding hokey, but the L’Oreal slogan — “Because you’re worth it” — is so important. I felt like here’s a campaign that realizes it can’t just be a catalyst. It actually has to encourage women to truly take care of themselves. Maybe you might start wearing lipstick or have great cheekbones that you could show off. You have to celebrate yourself even when you’re feeling at your worst. On days when I’m not feeling so together, I’ll call my girlfriend and complain, and she tells me to go put on some heels, get pretty, and get out in the world. Half of life is showing up.

CS: President Obama wants to double funding for cancer research during his term, with specific money set aside for hard to treat diseases such as ovarian cancer. Do you think this is a good first step in making this disease more visible and ultimately improving survival outcomes?

KW: Definitely. We talk about early detection, but we have to put the money behind it. This is a disease that the president’s own mother battled. It’s so important for us to discuss women’s health, to get involved, and to provide a support system for women affected by ovarian cancer.

CS: Celebrity endorsements are critical for awareness campaigns. They make people pay attention to something they might not otherwise consider. When did you know that you wanted to become an advocate for this disease?

KW: The reason this became so important for me is because my mom is around today as a result of early detection, and that’s something that doesn’t typically happen with ovarian cancer. We have to work toward finding some sort of early detection method. Doctors often don’t know the symptoms of ovarian cancer, which are subtle. So much of this campaign is about awareness. Next month, for breast cancer awareness, you’ll be able to buy a million pink things. The projects surrounding breast cancer opened up the dialogue, and we’re hoping to do the same around ovarian cancer. L’Oreal is a really cool family to be in. All the proceeds from the Color of Hope makeup go to the Ovarian Cancer Research Fund, and they’re all good colors.

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Filed under healthy and wise, ovarian cancer awareness, women rule